Print this pageNSW Oncology Group: Child and Adolescent
NSWOG Child and Adolescent represents a collaboration of health professionals across the three key paediatric sites in NSW; Sydney Children’s Hospital, Children’s Hospital Westmead and John Hunter Children's Hospital. Members represent the range of health professionals involved in the care of children and young people with cancer – from medical and radiation oncologists to nurses, social workers, palliative care and pharmacy, with representation from CanTeen and parents also. The care of Adolescent and Young Adults with Cancer in NSW has been a focus of the Group since it first began meeting in 2006. The group was originally chaired by Professor Glenn Marshall and is now led by Dr Luciano Dalla Pozza, Head of the Department of Oncology at the Children's Hospital at Westmead.
Key activities of NSWOG Child and Adolescent:
NSWOG Priority Projects:
- Improving medical and psychosocial care for adolescents and young adults (AYA) with cancer
- Improving psychosocial care for adolescent and young adult survivors of childhood cancer
In 2007, the Cancer Institute NSW supported a project defined by each invited NSWOG as the priority activity to improving cancer care and control in their clinical area. The selected project was supported by the NSWOG membership, aligned to the Terms of Reference of the Group. NSWOG Child and Adolescent split their project funding across both their subcommittees – Adolescent and Young Adult Cancer Care and Survivorship.
NSWOG Priority Project A: Improving medical and psychosocial care for adolescents and young adults (AYA) with cancer
NSWOG Child and Adolescent subcommittee for Adolescent and Young Adult Cancer Care advised the Cancer Institute NSW on a need for information about the distribution of NSW AYA cancers, incidences, outcomes, referral patterns, clinical trial access and participation. In response the Cancer Institute NSW completed a high level literature review, compiled key NSW data and sought targeted key stakeholder input.
Click here to read the Cancer Institute NSW Monograph: Adolescents, Young Adults and Cancer in New South Wales - April 2009.
Click here to read the Project Summary Report.
Click here to view the COSA Poster 2008 Adolescent and Young Adult (AYA) Cancer in NSW.
NSWOG Priority Project B: Improving psychosocial care for adolescent and young adult survivors of childhood cancer
This project aimed to improve psychosocial care for adolescent & young adult survivors of childhood cancer, through reporting on the psychosocial issues, services required and outcomes with intervention for a cohort of long term survivors of childhood cancer requiring support. This includes a review of available literature, needs and resources in NSW. The report details key quality of life indicators and psychosocial concerns for survivors, the parameters of use (and non-use/non-compliance) concerning follow-up services, and recommendations for long term care of childhood cancer survivors. The full report will be completed late by 2009.
Click here to read the Project Summary Report.
