Print this pageInformation for Patients, Carers and Families - Links
Links to organisations that contain useful information have been provided. These links do not imply any endorsement, support or commercial gain by the Cancer Institute NSW, NSW Health Services or the State of New South Wales. The validity of the contents, while valuable, can not be guaranteed by the Cancer Institute NSW. More information is available in the Cancer Institute NSW Disclaimer.
Australian Sites
| Organisation | Description |
| Australian Institute of Health and Welfare | The Australian Institute of Health and Welfare (AIHW) is Australia's national agency for health and welfare statistics and information |
| Breast Cancer Action Group | Breast Cancer Action Group NSW Inc is an organisation for people who are, in any way, affected by breast cancer. It provides a "voice" for breast cancer affected people - wherever decisions about breast cancer are made - within areas of Government, health service provision, research, support and care services. |
| Breast Cancer Institute of Australia | The Breast Cancer Institute of Australia (BCIA) was established in 1994 by the Australian New Zealand Breast Cancer Trials Group (ANZ BCTG) to increase awareness and funding for breast cancer research. |
| Breast Cancer Network Australia | Breast Cancer Network Australia's role is to empower, inform, represent and link together Australians personally affected by breast cancer. It is driven by women who have themselves experienced breast cancer. |
| BreastScreen NSW | The State Co-ordination Unit is responsible for planning, implementation and coordination of BreastScreen NSW according to national and state aims. |
| Camp Quality | Camp Quality is a non profit organisation that is committed to bringing hope and happiness to the lives of children with cancer, their families and communities through ongoing quality recreational and educational programs. |
| Cancer Answers | The overall goal of the site is to provide cancer patients and their families the opportunity to freely access information about cancer services in Australia. |
| Cancer Council Australia ACT NSW NT QLD SA TAS VIC WA |
The Cancer Council Australia is Australia’s national non-government cancer control organisation. Our members are the eight state and territory cancer organisations, working together to undertake and fund cancer research, prevent and control cancer and provide information and support for people affected by cancer. |
| Cancer Net | www.cancer.net |
| Cancer Patients Assistance Society of Australia | The Cancer Patient's Assistance Society of New South Wales (CPAS) is a registered charity, non-profit organisation, controlled by a voluntary board of directors and advised by a committee of medical specialists. It supports patients living in regional and remote areas of NSW. |
| Cancer Screening | This site is updated by the Department of Health and Aging and provides information on current screening programs in Australia. In NSW, see BreastScreen NSW and NSW Cervical Screening Program |
| Cancer Voices NSW | Cancer Voices NSW is a peak advocacy organisation providing a unified voice for all people affected by cancer in New South Wales (Australia). |
| CanTeen | CanTeen, The Australian Organisation for Young People Living with Cancer, is a national support organisation for young people (aged 12-24) living with cancer; this includes patients, siblings and offspring. Young cancer patients created CanTeen and its policies are guided by young people living with cancer. |
| Centrelink | Centrelink is a government agency delivering a range of Commonwealth services to the Australian community. |
| Consumers' Health Forum | Consumers' Health Forum (CHF) is the leading national organisation providing a voice for all health consumers. CHF's strategic direction is set by its voting members. |
| Cure Cancer Australia | Cure Cancer Australia aims to be Australia’s leading independent foundation for cancer research. We fund the critical early work of brilliant investigators searching for cures for cancers. We have funded grants across all areas of cancer research, including children’s cancers, breast, skin, prostate, thyroid and bladder cancers and leukaemia. |
| Department of Health and Ageing http://www.health.gov.au http://www.health.gov.au/roi http://www.health.gov.au/pq/cancer |
The Australian Government’s Department of Health and Aging aims to provide better health and healthier ageing for all Australians through a world-class health system. One focus of the Department is radiation oncology and radiotherapy. |
| Garvan Institute | The Garvan Institute is internationally recognised as a leader in gene based medical research and is committed to delivering new insights into major diseases and novel ways to prevent and treat these disorders. |
| Gut Foundation | The Gut Foundation provides professional and public education and promotes research into digestive disorders to improve gastrointestinal health. |
| Gynaecological Cancer Society | This site supports the Society’s Information and Education Program |
| HealthInsite | HealthInsite is an Australian Government initiative, funded by the Department of Health and Ageing. It aims to improve the health of Australians by providing easy access to quality information about human health. |
| Informed Health Online | Informed Health Online is produced by the Health Research and Education Foundation Ltd. The Foundation is a not-for-profit health promotion organisation based in Melbourne. The Foundation aims to provide information and resource tools that enable people to keep up-to-date with reliable, evidence-based information. The Foundation promotes research literacy, and individual and community use of high quality research. |
| Kolling Institute of Medical Research | The Kolling Institute of Medical Research is the oldest medical research institute in NSW, established by Act of Parliament in 1920. It is accredited by the National Health and Medical Research Council and affiliated with the University of Sydney. It encompasses several biomedical research groups with expertise in growth and growth factors, cancer cell biology and genetics, community genetics, renal medicine and hypertension, and perinatal medicine. |
| Leukaemia Foundation | The Leukaemia Foundation is a progressive national organisation dedicated to the care and cure of patients with leukaemia*, lymphoma, myeloma, aplastic anaemia and related blood disorders. |
| Lions Australasian Prostate Cancer | This site has been developed by the education committee of The Australian Prostate Cancer Collaboration (APCC) with funding from the Lions International Clubs of Australia to assist men affected by prostate cancer and their families. |
| Lymphedema Association of Australia | The Lymphoedema Association of Australia encourages research into lymphoedema (lymphedema) and its treatment, and to spread information about these among doctors, therapists and patients. |
| National Breast & Ovarian Cancer Centre | The National Breast Cancer Centre is Australia's peak body for breast and ovarian cancer control. The National Breast Cancer Centre works with women, health professionals, cancer organisations, researchers and governments to reduce the number of Australian women who die from breast and ovarian cancer. |
| National Breast Cancer Foundation | The National Breast Cancer Foundation (the Foundation) is Australia’s only national not-for-profit foundation established to promote and support research into every aspect of breast cancer. |
| National Cancer Control Initiative | The National Cancer Control Initiative is a partnership between The Cancer Council Australia and the Australian Department of Health and Ageing. The NCCI is entirely funded by the Commonwealth. The role of the National Cancer Control Initiative is to provide timely and expert advice to the Commonwealth Government and other key groups on all issues related to cancer control as well as manage a range of cancer related projects. |
| National Ovarian Cancer Network | OvCa Australia supports women with ovarian cancer and their families. We increase awareness about the most lethal of all gynaecological cancers, promote the need for effective early detection, and encourage access to the best possible care. |
| NSW Cervical Screening Program | This site provides information & resources to consumers & health service providers on issues relating to cervical cancer screening. |
| NSW Department of Health | The NSW Department of Health is responsible for providing the people of New South Wales with the best health care. It also funds public health services, develops policy, supports the statutory role of the Minister for Health, manages public health issues, and monitors the performance of the health system. |
| New South Wales Parliamentary Counsel's Office | The Parliamentary Counsel's Office (PCO) is the legislative drafting office for the State of New South Wales. It drafts all Bills required for introduction into Parliament and drafts or settles a wide range of subordinate legislation, including regulations, rules, proclamations and orders. The PCO also provides an integrated range of services for publishing legislation and providing advice and information about legislation. |
| Northern Sydney Central Coast Health Cancer Services | An initiative of Cancer Services in Northern Sydney Health, this an interactive website that provides patients, their carers, their relatives and interested others with information about the treatment facilities available in Northern Sydney Central Coast Health in addition to providing some general information about cancer. |
| Palliative Care Australia | Palliative Care Australia is the national peak body for palliative care in Australia. Our goal is to work toward the relief of pain and suffering of dying people in Australia and the provision of the care they need. |
| Pharmaceutical Benefits Scheme | For the past 55 years the Commonwealth Government’s Pharmaceutical Benefits Scheme (PBS) has consistently provided reliable, timely and affordable access to a wide range of medicines for all Australians. Every time you fill a prescription for a PBS medicine you receive a subsidy. From 1 January 2004 you pay up to $23.70* for most PBS medicines, or $3.80* if you have a concession card. The Commonwealth Government pays the remaining cost. |
| Prostate Cancer Foundation of Australia |
The information on this site about prostate cancer is presented from the perspective of patients who have experienced diagnosis and treatment for the disease. |
| Sun Smart | SunSmart provides sun protection advice for the community. |
| Sydney Cancer Centre | The Sydney Cancer Centre was created in 1996 by bringing together the cancer units at the Royal Prince Alfred Hospital (RPA), Concord Repatriation General Hospital and other hospitals of the Central Sydney Area Health Service. Today it offers expertise in surgery, radiation, drug treatment, cancer research and teaching. It is part of the campus of the University of Sydney. |
| VirtualCancerCentre.com | Australia's own comprehensive online cancer information resource has been created as an education resource by leading health professionals from the areas of Medical Oncology, Radiation Oncology, Haematology, Surgery and Palliative Care. The information is updated and supported daily by a force of GP's, national partners, and a dedicated Editorial Advisory Board of leading Australian specialists to ensure the information we provide is the most current and up-to-date. |
| Westmead Institute for Cancer Research | The Australian Cancer Research Foundation is a leading charity in Australia, dealing nationally and exclusively with cancer research funding. |
Information for Patients, Carers and Families - International Sites
Information contained on international sites may not be reflective of the needs of the Australian community.
| Organisation | Description |
| American Cancer Society | The American Cancer Society is the nationwide community- based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service. |
| American Society of Clinical Oncology | The American Society of Clinical Oncology (ASCO) is the world’s leading professional organization representing physicians who treat people with cancer. ASCO’s members set the standard for patient care worldwide and lead the fight for more effective cancer treatments, increased funding for clinical and translational research, and, ultimately, cures for the many different cancers that strike millions of people around the world every year. |
| American Society for Therapeutic Radiology and Oncology's (ASTRO') | The American Society for Therapeutic Radiology and Oncology's (ASTRO's) mission includes promoting excellence in patient care. This provides the public with up-to-date information on radiation therapy as a treatment option for cancer. |
| Association of Cancer Online Resources | The Association of Cancer Online Resources, Inc. (ACOR) is a non-profit organisation. ACOR supports mailing lists and develops and hosts state-of-the-art Internet-based knowledge systems that allow the public to find and use credible information relevant to their illness. |
| Association for International Cancer Research | The Association for International Cancer Research focus is on basic, as opposed to clinical research. |
| CancerBACUP | CancerBACUP's mission is to give cancer patients and their families the up-to-date information, practical advice and support they need to reduce the fear and uncertainty of cancer. |
| CancerCare | CancerCare is dedicated to providing emotional support, information, and practical help to people with cancer and their loved ones. |
| CancerFacts | cancerfacts.com is owned and operated by NexCura, Inc. It uses scientific data from significant clinical studies to generate reports tailored to a patient's unique medical condition through the NexProfiler™ Tool for Cancer, a powerful database tool. |
| Cancernet | This site provides information to patients and health professionals about cancer, treatments and prevention strategies. |
| Cancer Help UK | CancerHelp UK gives information about cancer for anyone who has concerns about cancer, principally people with cancer, their relatives and friends. |
| Cancer Research UK | Cancer Research UK is the leading funder of cancer research in the UK. |
| Cochrane Collaboration | The Cochrane Collaboration is an international non-profit and independent organisation, dedicated to making up-to-date, accurate information about the effects of healthcare readily available worldwide. It produces and disseminates systematic reviews of healthcare interventions and promotes the search for evidence in the form of clinical trials and other studies of interventions. |
| Health Canada http://www.hc-sc.gc.ca/english http://www.hc-sc.gc.ca/dc-ma/cancer/index_e.html |
Health Canada is the federal department responsible for helping the people of Canada maintain and improve their health. One aspect of the organisation focuses on diseases and conditions |
| International Myeloma Foundation | International Myeloma Foundation provides information about multiple myeloma including research and treatment advances, as well as information about the IMF, upcoming events and our research, education, support and advocacy programs. |
| Leukemia & Lymphoma Society | The Leukemia & Lymphoma Society offers the most comprehensive array of services to patients and families touched by blood cancers. A diagnosis of leukemia, Hodgkin or non-Hodgkin lymphoma, myeloma or other blood cancers brings many daily challenges. The Society is committed to providing support and guidance to patients and the health professionals who care for them. |
| Leukemia Research Foundation | The Foundation aims to reduce the incidence of leukaemia, lymphoma, and myelodysplastic syndromes by funding research into their causes and cures, and to enrich the quality of life of those touched by these diseases. |
| Macmillan Cancer Relief | Macmillan Cancer Relief is a UK charity that works to improve the quality of life for people living with cancer. |
| Mayo Clinic | Mayo Clinic is based on the idea of "cooperative medicine;" teams of experts combine their skills and experience to help solve people's medical problems. This link provides definitions of common cancer terms. |
| Medline Plus | MedlinePlus will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations. Preformulated MEDLINE searches are included in MedlinePlus and give easy access to medical journal articles. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news. |
| SkinCancerNet | SkinCarePhysicians.com provides patients with up-to-date information on the treatment and management of disorders of the skin, hair and nails. Patients and health care professionals may utilize this web site as a resource for educational literature and health guideline descriptions. |
| Memorial Sloan-Kettering Cancer Centre | Memorial Sloan-Kettering Cancer Centre’s foster innovative basic-science research focused on cancer and health care |
| National Cancer Institute (USA) | The NCI, established under the National Cancer Act of 1937, is the Federal Government's principal agency for cancer research and training. |
| National Centre for Complementary and Alternative Medicine | The National Centre for Complementary and Alternative Medicine (NCCAM) is 1 of the 27 institutes and centres that make up the National Institutes of Health (NIH). The NIH is one of eight agencies under the Public Health Service (PHS) in the Department of Health and Human Services (DHHS). NCCAM is dedicated to exploring complementary and alternative healing practices in the context of rigorous science, training complementary and alternative medicine (CAM) researchers, and disseminating authoritative information to the public and professionals. |
| National Health Service | The NHS aims to bring about the highest level of physical and mental health for all citizens, within the resources available by promoting health and preventing ill-health, diagnosing and treating injury and disease and caring for those with a long-term illness and disability, who require the services of the NHS. |
| National Institutes of Health (NHI) | National Institutes of Health (NHI) is dedicated to improving the health of Americans by conducting and funding medical research. We also train scientists, and communicate medical and health sciences information to patients, their families, health care providers and the general public. |
| Oncolink | OncoLink was founded in 1994 by Penn cancer specialists with a mission to help cancer patients, families, health care professionals and the general public get accurate cancer-related information at no charge. |
| Prostate Lab | Providing men, their loved ones, and their physicians the objective information needed to make informed rational decisions concerning the screening, diagnosis, prognosis, and treatment of prostate disease. |
| Susan G. Komen Breast Cancer Foundation | The Susan G. Komen Breast Cancer Foundation has been a global leader in the fight against breast cancer through its support of innovative research and community-based outreach programs. |
| World Health Organisation | The World Health Organization, the United Nations specialized agency for health, was established on 7 April 1948. WHO's objective, as set out in its Constitution, is the attainment by all peoples of the highest possible level of health. |
