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Data and Statistics

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The Cancer Institute NSW manages data registries that provide the most up-to-date overview of cancer in NSW. From this we can provide accurate and comprehensive information about cancer, trends, outcomes and risk factors, so we can better control cancer within our communities.

Detailed information about every new case of cancer diagnosed and treated in NSW is sent to our registries under strict privacy and security measures. We then use these data to report cancer incidence, mortality and survival, which supports the work of clinicians, policy makers, planners and researchers. This information is also available to the general public, cancer patients, carers and survivors.

We collect, link, interpret and report high quality cancer information to optimise cancer outcomes in NSW. This includes data on:

  • cancer incidence and mortality
  • cancer stage, treatment and quality of care
  • mesothelioma incidence, mortality and exposure to asbestos
  • Pap tests and related follow-up tests
  • breast screening
  • hereditary bowel cancer.

The data are used to:

  • monitor new cases, deaths and survival from cancer in the NSW population
  • monitor and evaluate the quality and outcomes of cancer treatment to inform best clinical practice
  • support screening programs and monitor and evaluate their performance
  • compare local, national and international trends in cancer
  • plan cancer services
  • support research activities.
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