Contact the HCR

Ph (toll free): 1800 505 644

Office location

Australian Technology Park
Level 9, 8 Central Avenue
EVELEIGH NSW 2015

The Cancer Institute's location on Google Maps
Click to view more detail

Postal address:

NSW & ACT Hereditary Cancer Registry
c/o Cancer Institute NSW
PO Box 825
ALEXANDRIA NSW 1435

Useful resources

HCR registration form (for health professionals only).

HCR Screening update form (for use after appointments).

Contacting Family Members brochure.

Genetic counselling services in NSW and the ACT.

Genetic cancer information and resources on eviQ (requires free registration and log-on).

 HCR Newsletters

Hereditary Cancer Registry

Share this page Email this page to a friend Share this page via Twitter Share this page via Facebook Share this page via LinkedIn

The Hereditary Cancer Registry (HCR) was established in 1990 to provide information and support to people affected by hereditary cancer (particularly familial colorectal cancers), their family members who may be at-risk, and their doctors in NSW and the ACT.

While there are a number of hereditary related cancers, the conditions focussed on by the HCR include:

What does the Hereditary Cancer Registry do?

The HCR aims to assist people from families with a high risk of hereditary cancer to understand and manage their risk. It does this by:

  • Building a complete picture of the condition in a family, assisting doctors to assess risks and plan screening and treatment.
  • Developing knowledge about the incidence of hereditary cancer conditions in NSW and ACT .
  • Contributing to better information, services and support for patients and their families.

Why should I register and how do I register?

People from high-risk families are encouraged to register with the HCR to take advantage of our information, screening expertise and other services.  These services include:

  • A screening reminder service for you and your doctor/s to help you keep track of your various appointments.
  • Assistance with informing relatives of their risk by providing letters and other written information about your family's particular condition.
  • Contacting registers interstate and overseas for the benefit of family members
  • Booklets and pamphlets about hereditary cancer conditions.
  • Current information about hereditary cancer, its prevention, early detection, diagnosis and management
  • Information about genetic services and tests
  • Public information events with expert speakers and a chance to meet other families
  • Assistance with contacting support groups (cancer / ostomy / genetics).
  • Access to confidential telephone counselling
  • Access to education and research materials

Registration is voluntary, and personal information is held confidentially under the Health Information and Records Privacy Act.

Registration can be completed using the registration form provided by your doctor or genetic counsellor or contact the HCR for more information.

The two graphs below show the total number of HCR registrants, and number of new registrations per year (2009).

HCR registration

Top of page