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NSW Central Cancer Registry Data Access

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The NSW Central Cancer Registry maintains records of people with cancer and reports on the impact of cancer in the community.

About the NSW Central Cancer Registry (CCR)

The CCR is a population-based registry that records all new diagnoses of cancer in NSW residents and all deaths from cancer. A case of cancer is the occurrence of a primary malignant neoplasm in one organ of a particular person. Therefore a case of malignant melanoma in a particular person counts as one case. If the same person subsequently develops leukemia, the leukemia counts as a second case. The CCR records new cancer cases and does not capture cancer recurrences.

Applying for data access

To obtain data please complete one of the following two forms:

Data Request Form A
to be completed if you wish to obtain summarised data in a table format.

Data Request Form B
to be completed if you wish to obtain data at an individual level or unit record level.

Please send a copy of your data request to the Data Access Coordinator at DARenquiries@cancerinstitute.org.au

Any issues or feedback related to completing the forms should be directed to the Data Access Coordinator

Please note, NSW Cancer Registry data (cases and deaths) are complete to end of 2008.

Data access diagram

Approvals required for release of data

To understand the approval process for release of NSW CCR Unit Record data, please refer to the diagram below:

Approvals required for release of NSW CCR Unit record data

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