Reporting cancer to the registries
When a hospital, health facility or pathology laboratory diagnoses or treats someone with cancer they are required by law to notify the Central Cancer Registry.
This is a requirement of the Public Health Act
What institutions should submit cancer notifications?
The following institutions submit cancer notifications to the
NSW Central cancer Registry:
- pathology laboratories
- radiotherapy and medical oncology departments
- multi-purpose services
- forensic medicine
- residential aged-care facilities
- day procedure centres.
What information is included in a cancer notification?
Cancer notifications contain information about patients with
cancer that includes:
- Name, address, date of birth and sex
- Country of birth and Aboriginal status
- Clinical details about the cancer
- Information about the notifying institution and doctor.
Personal details, such as name and address, are needed to enure
that accurate information is recorded for each person (as people
are often treated at multiple locations) and that each new cancer
is only counted once.
Cancer notifications are provided as either, pathology reports
from pathology laboratories, death certificates from the Registry
of Births, Deaths and Marriages, or according to the Cancer
Notification Form from hospitals and other notifying institutions.
The Central Cancer Registry processes over 250,000 notifications
each year, equating to 36,000 cases of Cancer.
How should notifications be submitted to the Central Cancer
The Cancer Registry Policy Directive outlines the types of
notifications that should be submitted to the Central Cancer
Registry, along with instructions on the institutions that are
required to submit these notifications.
Notifications from Private hospitals are provided through the
Cancer Notification Portal.
Link to the Notification
Who is responsible for the notification data?
The NSW Department of Health owns the notification data and the
Cancer Institute NSW is the manager and custodian of the
data. The notification data is stored in a database called
the NSW Central Cancer
What is the data from cancer notifications used for?
The notification data are used to compile the NSW Central Cancer
Registry. The principal objective of the NSW Central Cancer
Registry is to contribute to the prevention, control and treatment
of cancer in the population by the supply of timely and accurate
data based on the incidence and outcomes of cancer in NSW.
The NSW Central Cancer Registry publishes yearly statistical
reports showing numbers and rates of new cases of cancer and deaths
from cancer in NSW.
These reports are widely available to the public and used by
clinicians, health planners and researchers. The NSW Central Cancer
Registry provides data to the Australian Institute of Health and
Welfare and contributes to national and international statistical
reports and research on cancer.
Who can I contact for further information on cancer
For further information, please contact the Cancer Notifications
Manager on (02) 8374 3649.
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