A 'shared care' pilot project: The Cooma Oncology
Unit
Greater Southern Area Health Service and the Monaro Committee
for Cancer Research sought to establish a pilot 'shared care'
oncology service in Cooma, NSW. The aim of the project was to
establish and evaluate a new model of oncology service delivery
through partnerships between metropolitan oncologists, local rural
GPs and nursing staff. The model was designed differently from
other rural oncology services in that there were to be no visiting
oncologists to the site. The pilot program also provided an
opportunity to assess sustainability from financial, resource and
skilled workforce perspectives.
Overview of approach
The expected objectives of the project were to:
- Develop a shared care model of service that could be
implemented in other rural areas across NSW.
- Increase access for rural patients to a local treatment service
that assists in supporting patients throughout their cancer
journey.
- Develop a model of service that addresses community need,
allows patients to access services closer to home, meets
chemotherapy administration standards and ensures optimal patient
outcomes.
- Develop a model that is sustainable from both a financial,
resource and skilled workforce perspective.
- Reduce the burden of isolation from family who stay overnight
for treatment (Canberra), and the financial hardship for rural
patients and carers having to access services in a metropolitan or
regional location.
- Review the hardships of travel for patients including such
issues as feeling unwell from the effects of chemotherapy, family
disruption and loss of work time and income.
- Design, implement and evaluate a shared care model of service
that has community input and support and will assist with future
demands on oncology services.
- Develop a partnership arrangement of 'shared care' between
metropolitan medical oncologists and local rural GPs.
- Increase trained local staff accredited to administer certain
oncology treatments locally.
The focus of the pilot was to develop a 'shared care model' with
GPs, oncologists and nursing staff as opposed to the models working
in other units with shared care between the oncologist and the
nursing staff. The challenge for this pilot was to determine how
the GP would be involved beyond the contributions already being
made by them within the hospital.
Project Methodology
The GSAHS employed a collaborative approach to the development
of the model through consultation with ACT Health, local health
professionals, representatives of the Cooma Community, the Cooma
Monaro Cancer Research Committee and the local AHS. The AHS's
approach was to use the buy-in of key stakeholders and the
experience of the clinicians to build on the existing framework of
oncology services in the Southern Cancer Network.
A 'shared care' approach involved the training of local nursing
staff in order to provide a local oncology treatment service that
meets the needs of the community and is safe and consistent with
the skill level of providers. It was essential that the project
optimise the limited available time of the clinicians to be
involved and this was achieved by their limited direct involvement
with treatment procedures but their ongoing backup support being
provided at all times. This project facilitated effective
communication and collaboration between the oncology specialists,
the local GPs and the local oncology nurses and obtained their
support and feedback in the model.
The oncology specialists developed criteria for chemotherapy
treatments appropriate to be administered locally under a shared
care arrangement and with appropriate training of local staff. They
also were responsible for assessing the patient, establishing and
prescribing the treatment plan. Once the treatment plan was
determined, the oncology specialist communicated with the oncology
nurses about the delivery of that treatment plan. Any proposed
deviation from the prescribed treatment plan was further assessed
by the oncology specialist through communication with the oncology
nurses and local GPs.
There was appropriate training of nursing staff, including a 6
week placement at The Canberra Hospital in the ACT. Training and
ongoing mentoring and support were provided to the oncology staff
by the area CNC in addition to their enrolling in further tertiary
cancer care studies.
To administer intravenous chemotherapy safely, initially two
RN's were identified and chemotherapy oncology trained. In
addition, two additional staff members were then recruited, trained
and became available to cover for leave. Continuity of care
was required around the organisational aspects of chemotherapy
administration (ie booking of appointments and treatments, referral
to other health care providers, organising pathology tests, medical
imaging, outpatient scripts, ordering of chemotherapy, supportive
drugs, etc). There were also numerous administrative duties
and organisational aspects that were undertaken during the
beginning of the Unit's operations.
Project Results
The development of the oncology unit came about primarily
through community support for the project. By being developed
through an identified funding opportunity to support the
development of the unit, it presented several challenges.
Preparation time to get the program running was limited.
There were also few change management processes undertaken and with
no project manager appointed, the setting up of the service
resulted in additional workloads for some management and staff
causing additional stress and anxiety. Once the unit was operating,
however, most staff were satisfied with the outcomes and daily
running of operations.
Expressions of interest for staffing of the new unit were at times
rushed as was the intensive short term training required. The new
oncology staff appointed also had to learn the 'clerical' duties
required as well as put into practice their new clinical
skills.
The number of patients that the unit would cater for was
relatively difficult to predict but advice received by oncologists
and from the establishment of other units was that the unit would
start slowly for the first 12 months. The slower development of the
unit also allowed staff to gain confidence and experience, patients
to feel reassured about the services and standard of care, and the
oncologist to be comfortable in referring according to the level of
criteria. The referral processes from the oncologists from Canberra
was initially mixed with many referrals coming directly from
requests from the patients who informed the oncologists of the
Cooma Oncology Unit, and asked if they could receive treatment
there. The referral process, however, was well defined with the
oncologists being involved in the development of the criteria. The
complexity of treatment would increase as the skill level of the
nurses increased.
Key findings were that:
- A total 271 Occasions of Service were provided within the
oncology unit from September of 2007 to September 2008. The
predominant tumour streams were colorectal cancer and breast
cancer. These two groups accounted for 97 and 35 occasions of
service. Urology and haematology accounted for 11 and 9 occasions
of service. Non oncology treatments accounted for 7 occasions of
service.
- Overall, the Cooma Oncology Unit Pilot Project delivered in its
main objectives to develop a model of service that addresses
community need, allows patients to access services closer to home,
meets chemotherapy administration standards and ensures optimal
patient outcomes. The development of a shared care model was
largely successful from with the Cooma oncology nursing staff
having close communication links with the Canberra oncologists.
Although this pilot project intended that the Cooma GPs would be
key partners, in practice their role has been one of providing
backup support for emergencies and keeping informed of patient
outcomes. Local staff were appropriately trained to administer
oncology treatments from Cooma and have continued to receive
ongoing training programs.
- Initially, the staff and management indicated that establishing
the unit in such a short time frame created some stress and
frustration amongst the Cooma staff. A longer lead time to
accommodate a more planned approach with appropriate time frames
and a full change management process before the introduction of any
service would have probably reduced the identified staff stress.
Adding to these difficulties was a delay in recruiting oncology
nursing staff and, despite available funding, a designated project
manager to oversee and direct the introduction of the new service
was never appointed. Many of these tasks had to be undertaken by
the local manager, cancer program manager and area CNC adding to
their existing workloads.
Future Directions
The Cooma Oncology Unit demonstrated its ability to provide a
quality and safe rural oncology service for its local
community. It therefore could remain as a viable operational
unit if it continually addresses the sustainability issues,
being:
- ongoing staffing issues including training and succession
planning;
- financial and staff resources; and
- patient numbers and occasions of service justifying the
continuation of the service.
This pilot project and aspects of this model could be
transferred to other rural sites within NSW. If the Cancer
Institute NSW is interested in developing other rural models of
care, the Cooma model should be carefully considered for its
strengths and weaknesses and how it could be included at other
rural sites.
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