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Cancer Institute NSW
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Patient Support

Cancer is a devastating and pervasive disease that touches everybody in some way. We want to make sure people with cancer and their families have a positive experience within the health system, from diagnosis through to their treatment and care.

Improving the patient experience

That's why we have developed some tools that will empower patients and better inform them and their families about what they can expect when dealing with the disease.

Resources for patients and carers

Evaluation

We have also developed a number of valuable feedback tools so that we can continually identify ways to provide more support for patients and their families.

Some of these include

  • Continuing involvement in patient satisfaction surveys,
  • Reviewing patient screening and assessment tools and their appropriateness for the cancer setting.
  • Commissioning a project to understand the gaps in what patient information is currently available, as part of the National Cancer Directory developed and maintained by the Cancer Council NSW.

We also have a Memorandum of Understanding (MOU) in place with patient advocacy group Cancer Voices NSW to ensure consumer representatives are invited to sit on each of our relevant committees and working parties, alongside other members of the community who have had a cancer experience.

The brain cancer community is also supported with an annual support and education forum, in line with the national Brain Cancer Action Week.