NSW Population and Health Services Research Ethics Committee
This committee has responsibility for ethical reviews of any research involving data and statistics held by NSW Health and the Institute.
Research projects reviewed by this committee may include:
- Population health research utilising data from the NSW Central
Cancer Registry, the NSW Pap Test Registry, BreastScreen Registry,
and other data and information collected, held and/or managed by
the Cancer Institute NSW.
- Population health research utilising data from the NSW Health
Inpatient Statistics Collection, the NSW Midwives Data Collection,
the NSW Emergency Department Data Collection, and other data and
information collected, held and/or managed by NSW Health.
- Research involving the linkage of a population health data
collection owned and/or managed by NSW Health or the Cancer
Institute NSW, with other data collections.
Submitting Proposals
Application forms are available via Online Forms, the national
system that enables users to complete their applications for
research electronically.
National Ethics
Application Form (NEAF)
For information on the required documentation for submissions to
the NSW Population & Health Services Research Ethics Committee,
please refer to the Submission Checklist. Please include a
copy of this checklist with your application.
Submission Checklist
- Applicants must email a copy of the submission checklist, the
application form and all support documentation to: ethics@cancerinstitute.org.au
- Please send in hard copy, one (1) copy of all documentation
(with original signatures), and eight (8) copies:
- Via Post:
Ethics Coordinator
Cancer Institute NSW
PO Box 41
Alexandria NSW 1435
- In Person:
Ethics Coordinator
Cancer Institute NSW
Australian Technology Park
Level 9, 8 Central Avenue
Eveleigh, NSW 2015
Please note: applications will not
progress to a committee review if a soft copy (via email) is not
provided with the required number of hard copies.
Uncollated documents will not be accepted.
2012 meeting dates
The NSW Population & Health Services Research Ethics
Committee meets on a monthly basis. Submission closing dates for
applications are 11 working days prior to the next meeting. This
allows for independent scientific review.
| Meeting Date |
Submission Closing Date |
| 16th February |
1st February |
| 15th March |
29th February |
| 19th April |
4th April |
| 17th May |
2nd May |
| 21st June |
6th June |
| 19th July |
4th July |
| 16th August |
1st August |
| 20th September |
5th September |
| 18th October |
3rd October |
| 15th November |
31st October |
| 20th December |
5th December |
Data governance
Proposals involving access to data held or managed by the either
the Cancer Institute NSW, including the Central Cancer Registry,
the Pap Test Registry, Breast Screen NSW, or the Cervical Screening
Program, or the NSW Department of Health must be reviewed by the
relevant Data Custodian before applying
to the Ethics Committee.
Researchers are required to complete a Data Request Form NSW CCR only and
submit this to the relevant data custodian for review.
Data
Request Form NSW CCR
Data custodians are required to sign off on all
requests for data from registries owned or managed by NSW Health or
the Institute. The Data Custodian Sign Off form must be
included with the application form.
Data
Custodian Sign Off form
The Ethics Committee will not review research proposals unless
researchers have contacted the relevant data custodian, and an
assessment of data governance issues has been started. For further
information about this process, please refer to the Cancer
Institute NSW Data Governance policy.
While the Ethics Committee will determine the ethical
acceptability of such proposals, the authority to release data lies
with the data custodian of the particular data collection, and
Director-General of NSW Health or his/her delegate for individually
identified data.
Committee members
The current members of the NSW Population and Health Services
Research Ethics Committee include experts in research and clinical
care, lay members and religious representatives.
The NSW Population & Health Services Research Ethics
Committee has been constituted in accordance with the National
Health and Medical Research Council's National
Statement on Ethical Conduct in Human Research (2007).
| Member |
NHMRC Category |
| Prof Richard Madden |
Chairperson |
| Dr Sallie Pearson (Deputy Chair) |
Research Experience |
| Ms Patricia Kenny |
Research Experience |
| Dr Alys Havard |
Research Experience |
| Dr Deborah Loxton |
Research Experience |
| Dr Lucy Burns |
Research Experience |
| Dr Natasha Nassar |
Research Experience |
| Prof Deborah Black |
Research Experience |
| Prof Kathryn Refshauge |
Professional Care |
| Dr Ingrid Evans |
Biostatistician |
| Mr Jason Bentley |
Biostatistician |
| Dr Jo Mitchell |
Chief Health Officer Nominee |
| Dr Louise Fitzgerald |
Lay Member |
| Mr Raymond Tong |
Lay Member |
| Ms Rachel Williams |
Lay Member |
| Dr Isabel Karpin |
Legal Member |
| Mr Geoffrey Bloom |
Legal Member |
| Pastor Rachael Goth |
Religious Member |
| Rabbi Jeffrey Cohen |
Religious Member |
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