Neuro-oncology
NSWOG Neuro-Oncology was established in September 2005.
It has an active membership led by Dr
Kerrie McDonald, Head Cerebral Research at the Kolling
Institute of Medical Research. The group has multidisciplinary
membership across both adult and paediatric specialities,
representing the complex journey of a neuro-oncology patient. This
includes neurosurgeons, medical and radiation oncologists, social
workers and nurses, rehabilitation physicians and palliative care,
pathologists, consumers, as well as representation from research
and clinical trials.
Key activities and projects
Brain Tumour Support & Education Forum - 13 May 2011
A free information day for brain cancer patients and their
families, hosted by the Cancer Institute NSW Oncology Group
Neuro-Oncology. The day featured educational sessions presented by
brain cancer clinicians and professionals involved in all spectrums
of care throughout the patient journey. Included was a talk from
international guest speaker Associate Professor David Reardon,
Associate Deputy Director at the Preston Robert Tisch Brain Tumour
Center at Duke University Medical Center, North Carolina, USA.
View the
webcast recordings
Read the
Evaluation Report
Brain Tumour Support & Education Forum - 5 May 2010
NSWOG Neuro-Oncology once again hosted a free information day
for brain cancer patients and their families. This year's program
featured both adult paediatric sessions, presented by brain cancer
clinicians and professionals involved in all spectrums of care
throughout the patient journey.
Session summaries, audio files and information resources
Read the Evaluation Report
Brain Tumour Nursing Education project
NSWOG Neuro Oncology identified the need for a short induction
for nurses who work in neurological wards, to highlight the special
needs of brain tumour patients. An education module will be
developed.
Brain Tumour Support and Education Forum - 28 October 2008
120 patients, carers, families and health professionals attended
the NSWOG Neuro-Oncology Brain Tumour Support and Education Forum,
to hear leaders in the field describe the complex patient journey
in simple terms - from surgery, radiotherapy and chemotherapy to
research and rehabilitation.
The day also featured inspirational stories from patients and
carers, which included Marcella Zemanek.
Click
here for session summaries, audio files and links to media and
information resources.
NSWOG Priority Project: Addressing the cognitive and
behavioural sequelae of adults with brain tumour: trialling a
Behavioural Consultancy Model
In 2007, the Cancer Institute NSW supported a project defined by
each invited NSWOG as the priority activity to improving cancer
care and control in their clinical area. The selected project was
supported by the NSWOG membership, aligned to the Terms of
Reference of the Group.
The NSWOG Neuro-Oncology Priority Project, funded by the Cancer
Institute NSW, addresses the cognitive and behavioural sequelae of
brain tumour. An important component of the project was to improve
the information resources about behavioural problems for patients
and their families. A series of fact sheets have been developed on
typical cognitive and behavioural changes that may occur after
diagnosis with a primary brain tumour.
Click here to read the Report
Click
here to read the Project Summary Report.
Useful resources
Posters
The Prevalence of Behavioural and Executive Cognitive Sequelae in
Patients with
Primary Brain Tumour and the Development of Information
Resources
Abstracts
The prevalence of behavioural sequelae in patients with primary
brain tumour and the development of information resources
The prevalence of cognitive and behavioural sequelae of adults with
a brain tumour
Managing challenging behaviours after brain tumour; a resource for
patients, carers and health providers
Patient functional status is strongest correlate of challenging
behaviour after brain tumour
Multi-tiered intervention study for patients, carers and health
providers to address challenging behaviours after brain tumour
The impact of cognitive and behavioural sequelae in patients with
primary brain tumour on family members
Resources for patients
NSWOG Neuro-Oncology developed 16 brain cancer fact sheets
that provide important information about many of the thinking and
behaviour changes people may experience after a brain tumour.
For more information or a hardcopy of these resources, please
contact Kylie
Wright on or Teresa
Simpson.
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