Men living with prostate cancer in Australia will have the opportunity for improved treatment, with the launch of the world’s largest national prostate cancer registry.
In Australia, prostate cancer is the most commonly diagnosed cancer in men, with around 120,000 people living with the disease.
It’s estimated that 18,138 new cases of prostate cancer will be diagnosed this year, and a third of those will be in NSW.
The launch of the Prostate Cancer Outcomes Registry – Australia and New Zealand (PCOR-ANZ) will help to build a more comprehensive insight into the quality of life for men with prostate cancer throughout their cancer journey.
It aims to give clinicians the information they need to minimise the risk of side effects, as well as redefine and tailor treatment options.
While more men are now surviving prostate cancer, their quality of life has in some cases been significantly affected.
Men going through treatment for prostate cancer are often left with adverse effects that seriously impact their ability to live a normal life, including incontinence, sexual and intimacy issues and psychological distress.
POCR-ANZ will focus on the patient experience, enabling clinicians to monitor patient results on an ongoing basis at a population level, and allowing patients a more personalised experience.
Launched by the Movember Foundation, the registry spans across all states and territories in Australia and New Zealand.
The NSW arm, called the Prostate Cancer Clinical Registry (PCCR), is managed by the Cancer Institute NSW in collaboration with the NSW Agency for Clinical Innovations and Monash University.
Why is the registry important?
Prostate cancer is the most common cancer diagnosed in Australian men and is most prevalent in men aged 70 years and over.
The number of men diagnosed with prostate cancer is growing, thought to be due to early screening, increased detection and the ageing population.
PCCR and PCOR-ANZ are a practical means of improving men’s lives following a diagnosis of prostate cancer.
It will help clinicians provide more support to their patients by taking into account the personal impact of treatment options on men’s lives.
How will the data collected by the registry help?
The registry aims to capture trends and variations in treating prostate cancer and the impact of treatment on men with prostate cancer.
Data collected by the PCCR and PCOR-ANZ will help:
- increase use of best practice-based guidelines
- assess patterns of care
- reduce variation in treatments and outcomes
- identify factors that predict treatment outcomes
- provide patient information on the risks and benefits of prostate cancer treatment
- support research at a population level.
How can you get involved or learn more?
You can find more information about what participation in the NSW registry involves through the PCCR website or by reading the pilot program.
To contact the PCCR, please email firstname.lastname@example.org.