Our data strategy vision

To improve cancer outcomes and lessen the impact of cancer for all people of NSW and the NSW health system through information, knowledge and insights out of data and system engagement.   

The Cancer Institute NSW is committed to raising awareness, knowledge, and use of the Institute's considerable data assets, while fostering an open and transparent data culture to inform the management of health services and high-quality research whilst protecting the privacy of the people of NSW.

Find out more about how and why we collect your data >

Our goals include the provision of high-quality data to decision-makers across the health system while complying to legal, regulatory, and governance requirements. 

We use the Five Safes Framework to safely share data. 

 

Data custodians of data held by the Cancer Institute NSW review all requests for data using the Five Safes Framework.

Our data governance structure

We have implemented and maintain a robust data governance policy and process as this is crucial to ensure:

• strategic alignment of the Cancer Institute NSW data assets to the NSW Cancer Plan
• compliance with relevant legislation, policies, procedures and standards
• confidence in the data used to inform decisions
• effective assurance and control of data management processes
• formalised roles and responsibilities
• protection of the data through documented policies and procedures, and ongoing communication, education and monitoring.

View the Cancer Institute NSW's Data and Research Governance Policy (PDF) >

 

Data and research governance roles and responsibilities

Effective data governance is based on clear roles and responsibilities, which ensures that data is managed efficiently throughout the data lifecycle.